Tag: Autism
Final Essay
Madison Long
Dr. Foss
Disability and Literature
4/30/2020
Expecting Normal: based off of Jim Sinclair’s Don’t Mourn For Us
The first thing that really caught my attention in the article Don’t Mourn For Us, was in the second paragraph. Author Jim Sinclair talks about how parents, when they find out their child has autism, mourn for the child who they had expected to have. When you are having a child, you expect them to be normal and when it turns out that they are not, you will likely have mixed emotions. People seem to expect that everyone is normal until they are seen otherwise. The thought that I kept coming back to while reading this article was the expectation of normal. What is the expectation of being normal? Who is to say that those who are seen as other than normal are not the normal ones. All of these readings about autism and disability seem to make the reader realize that the way they are IS their version of normal. We, as a society, seem to only believe there is one form of being normal and if you don’t meet this expectation then you are looked down on. I believe that this is a naive way of seeing things. People need to open their minds to the possibility that yes, people with autism are different in many ways, but they are still human and they still have emotions like everyone else; they just show theirs differently. So I ask once more, what is the expectation of normal and why can someone who is autistic not be considered their own normal?
Expectations can be dangerous and yet it is a part of us. When we expect things to go one way and then they do not, it can crush you. The thing with expectations is that you have to allow yourself some space just in case things do not go as planned. Jim Sinclear describes giving birth to a child with autism when not expecting it as similar to having a stillbirth. You expect so much from this child, this baby, even before it is born and when you realize that these expectations are not possible, it can and will lead you to mourn the child that you did not have. Most parents expect high things of their soon to be child and when an autistic child is born instead of the child they were expecting, they might believe that this child can no longer exceed any expectations. The truth is that this is not at all true. Yes, your child may not be able to achieve those exact expectations, but that is more in your mindset than on their being autistic. The best thing to do would be to adjust your expectations to be more in tune to their way of doing things. Just because the expectations that they can achieve are different from the ones you had hoped for does not mean that they are any less than you. They are just more unique. Along with expectations, often comes the word normal.
What is normal and why do so many people spend their whole life trying to be it. What I have learned about the autistic community is exactly that, they are a community. They seem to know they are different from the rest of society in ways but that is their normal. We as humans often learn to think of life and everything in it as only having two sides. There are normal people who speak our language, think the same, see life the same way as us, that will have the same experiences as us. Then there are people who are not normal, who can not speak like us, think the same way, see life like we do, and who have different experiences from us. These “abnormal” people, we as society often think less of or pity. To them though, to those who are different and not seen as normal, this is their reality, their normal. They have their own way of speaking, of thinking, of seeing and experiencing life. These are all things that you can only understand if you are a part of them or if you try your best to understand and keep an open mind. It is not their fault that society can only seem to see it’s own reality instead of trying to see everyone’s reality.
When you put these two things together, expectation and being normal, you really just come to an unreasonable and unreachable idea of always expecting the normal. Of course there are also times when you expect better than normal. After you break down the meaning or meanings of normal do you realize that it is not fair to always expect your version of it from someone? It is ok to be excited and hopeful and expecting of a child that will soon be yours, but it is important to know that if this is not the case, if the child is not what you expected, that if they are autistic, it is not their fault and you need to learn to let go of the child you had expected. Once you have learned to let go, then start trying to learn and understand your autistic child’s version of normal.
In the end of the article Jim Sinclear has left a plea to parents of autistic children. This plea asks that you recognize the child that you have as an alien trying to navigate a new world. Not as the child that you lost because, this child never was. The child that you have needs you to do your best to understand and help them through in this world where they are different. Move forward with the child you have and stop moving backwards trying to find the child there never was going to be.
The conclusion that I have come to after reading and analyzing this article is that he wants people to see and hopefully understand the way he sees it. Autism is not something you should mourn over. What you should mourn over is what happens when someone who is autistic goes out into society and how they are treated, when treated as abnormal. But if you do mourn over this then do not just mourn, go out there and help. Change how they are seen and treated. Show society that their close-minded way of thinking is not the only way of thinking, and not the correct way.
word count: 1064
I pledge
work cited:
“DONT MOURN FOR US.” Dont Mourn For Us, www.autreat.com/dont_mourn.html.
Kellie’s Final exam
Kellie Bowman
4/30/20
English 384
Dr. Christopher Foss
Word count: 1,001
Final paper: Prompt 2
While some may have more access to resources around them that prevent race and disability from hindering their ability to thrive in life, race plays an essential part on how those with disabilities, including autism, are treated because they oftentimes feel ostracized from their community; even their own family. It is hard for those with a disability to feel as though they are supported if there are no resources around them, and it can be difficult for them to fully know themselves if they are not able to be educated and supported on such a matter.
In E. Ashkenazy’s theoretical piece Foreword: On Autism and Race, she talks about how life may be harder for those who have a disability and a person of color, citing some stories coming from those who have had firsthand experience with these hardships. There is no argument when it comes to race and identity, they practically go hand in hand. Your race could potentially make or break how challenging your life, or not challenging it is for that matter. Ashkenazy talks on personal experiences with her life as multiracial. “One of my favorite aspects of being multiracial is my ability to easily blend into the various cultures I’ve encountered. In my travels around the world, for example, I have often been pleasantly mistaken as a native and it’s a lovely feeling of acceptance and belonging. In Israel, I was Israeli. In Palestine, I was Palestinian. In Italy, I was Italian. And in Mexico, I was Mexican.” (Ashkenazy ⅹⅹⅳ). She talks about her wonderful experiences around the world that since she is multiracial (White, Japanese, Mongolian, Black, Cherokee, Indonesian) she was accepted in the best way possible by the natives wherever she traveled. She also talked about her experience with microaggressions, which defined are brief and commonplace daily verbal, behavioral, or environmental indignities, whether intentional or unintentional, that communicate hostile, derogatory, or negative racial slights and insults toward people of color. Although no harm was meant towards her, she had experienced microaggressions from her closest friends and family. Microaggressions are a common experience for people of color, even today.
Ahkenazy’s experiences with racism shine light on the fact that many are still uneducated on what is appropriate and what is inappropriate, especially towards those with disabilities. She goes on to mention that she has spoken with many people that had disabilities and those who are caregivers who have experienced blatant racism within their community and family. One in particular that she mentioned about a young Chinese girl who is on the autism spectrum, “She explained that in her culture, disability of any kind can bring shame on a family and is often a taboo topic. Her parents have been unable to accept her. In turn, this young woman has trouble accepting herself. She grew up walking on eggshells and was often heavily punished for not being socially aware of cultural customs, and for not performing at top levels in school.” (Ashkenazy, ⅹⅹⅹⅵ). Because this young woman’s family never truly accepted her for who she was, she had a hard time accepting who she was herself. She goes onto explain that when she discovered there was a group of people at her university that was specifically for people on the autism spectrum, and she was able to find comfort in that. This personal account goes to show that without a strong sense of understanding from the family and community of those with disabilities, their life is full of difficulty and challenges; both intrinsic and extrinsic.
In Morénike Giwa Onaiwu’s theoretical piece, Preface: Autistics of Color: We Matter., she talks about the experiences she faced herself as a person of color who also is on the autism spectrum. She speaks about one specific instance where she is arguing with her cousin who is biracial. “… Her concerns were legitimate, as she was never considered “black enough” or “white enough” for some people who unfairly wanted to make her “choose” one over the other. But her assumption that I was “luckier” than she because I looked “black” and she didn’t couldn’t be more wrong. My experiences were different than hers, but they weren’t easier. In some ways they might have been more difficult.” (Onaiwu Giwa ⅹⅲ). Onaiwu Giwa goes on to explain that her life as a young, disabled, black girl whose family is from Nigeria and has a South African background, was made up of not being able to feel as though she fit in anywhere because of her so called white mannerisms and differing fashion choices than those of the same race as her. Because she ate different food, dressed in different clothes and listened to different music than her black peers, she was not to be included with them; which in turn made her feel out of place for most of her young life. The way that society has shaped the view of what is ‘supposed’ to look autistic, or black, or any part of one’s identity has prevented Onaiwu Giwa and those like her to feel excluded from society; “I wasn’t considered “black” enough for my black American peers; despite our similarities in physical appearance…” (Onaiwu Giwa ⅹⅳ).
Ashkenazy and Onaiwu Giwa’s personal experiences and accounts from others highlight the importance of available support and resources to young persons of color that also have a disability. Without that net of support, there is a plethora of children that grow up feeling as though they have no community that they belong to, no safe haven that they can turn to in times of need. It is especially important for those families with children who are disabled to provide the utmost, supportive care they can to ensure that the child is met with the same opportunities that everyone else it met with. Race does play a role in how those with disabilities are treated because they are treated differently than their white peers, which is a point that Ashkenazy made in her piece and rings very true; and until something changes, it always will.
Works Cited
Kourti, Marianthi, et al. “All the Weight of Our Dreams: on Living Racialised Autism.” Disability & Society, vol. 33, no. 7, 2018, pp. 1175–1177., doi:10.1080/09687599.2018.1471811.
I pledge I did not receive help on this assignment: Kellie Bowman
Gina and Rosemary’s Final Exam
Gina-Marie An & Rosemary Pauley
Dr. Foss
April 30, 2020
ENGL 384
Autism and Identity: The Cure is Repressive
Throughout our Autism unit, we have discussed the ways in which autism has been devalued. Specifically, we have read instances of how medicine and medical research impacts the quality of life of an autistic person. Part 1 of Stuart Murray’s Autism begins with a contrast between stress on medical research versus improved education and which of the two is more beneficial for the autistic community. Murray suggests that “An improvement in the quality of people’s lives will come more quickly not with high level medical science, but rather with improved education or with increased public spending on disability programs…” (Murray, 9-10). He suggests that through an emphasis on medical solutions and a cure, autistic characteristics begin to be viewed through an ableist society as a negative characteristic that needs to be changed (Murray, 10). This reinforces ableist stereotypes that autism is problematic, undesirable, and in need of change and even full erasure. Through this reinforcement, autistic persons are stripped of their identities and they are isolated in their experiences with their disability. Erasure of the disability acts as an erasure of a part of their identity, which is associated with pity and negativity and makes the value of what is so key to their personhood worthless to society.
Medical emphasis on a cure is just another way of creating a social divide between neurotypical people and autistic people. They are cast out and ostracized because they don’t fit the definition of what our ableist society sees as conventional. For many researchers working towards a cure, curing is meant to take away autistic traits and get as close to neurotypical as possible. This notion of essentially taking away a key part of an autistic person’s identity devalues their personhood and separates them further from neurotypical people. Murray sums up this problem in pushing for a cure in saying that “the word ‘cure’ is a threat, a barely disguised attempt to define difference as something inherently negative and unwanted” (Murray, 90). Curing autism insinuates that autistic people are inferior to nondisabled people, and by that standard, they should be fixed to better fit into ableist society. A cure would be selling the lie that getting rid of autism is better for those who have it when really it would be beneficial for neurotypical people who do not understand the disability to make an effort in better understanding autism and disability itself. This push for the cure can be misleading and it doesn’t target improvement for the life and environment of autistic persons, it is targeted towards erasing the disability for the benefit of nondisabled people.
Lack of consideration for actual autistic experience further stretches the divide between abled and disabled. Personal freedom and independence are lost at the cost of misguided stereotypes on the autistic community. Autistic persons are deemed as unpredictable, even dangerous, and are not given equal opportunities to be independent individuals in society. For example, in Braddock and Parish’s An Institutional History of Disability, they discuss the ways in which history has revealed wrongful treatment of disabled persons in the medical realm. The medical world is described as impersonal and sterile; case studies and primary texts ignore the personal experiences of autistic people. As political activism came to a rise with the availability of more service programs, autistic lives are further socialized and infantilized through ableist social construction. These constructions ultimately try to decide what autism is and what the label of autism means for autistic people themselves. Braddock and Parish discuss this categorization and construction, saying, “The process of categorizing persons with disabilities into the minutiae of their impairments resulted in the development of specialized treatments and residential and educational services, but also established and reinforced notions of the boundaries between normalcy and aberrance in Western society” (Braddock and Parish, 13). The autistic label is not a label that others outside of the disability deserve to construct and define for their own benefit. It is even more offensive that they push these ideas onto autistic persons themselves and tell them who they are, without listening to autistic voices and wants. Abled persons who want to have ownership of this word are minimizing autistic people’s personal ability to have choice and demeaning them to be insufficient enough to be self-determinant. Creating more restrictions for the autistic community is only silencing their voices and limiting their opportunities for personal growth. Autistic persons are a part of this world as equally as any other person and deserve to create and dictate their own narratives and experiences.
Murray describes autism as being “built into the fabric of the person who has it… it is not an illness” (Murray, 90). Ableist standards expect people with autism to want to break away from their disability and strive for a neurotypical life as a default, not taking into account how valuable their disability actually is. Autism is such a prevalent and essential piece of who they are that attempting to take away their disability is like taking away their identity. Erasing part of someone’s existence because it doesn’t match the ableist viewpoints of our society is dehumanizing and insulting to autistic people and punishes them for not aligning with nondisabled experiences.
Ableist views dictate that autism is the problem rather than admitting that the way our society treats autistic people is unacceptable, and extend this lack of respect further by pushing for a cure that erases autism altogether. It is important to recognize how this might impact autistic lives. We should strive for more representation of their everyday experiences as well as their experiences with a society that stereotypes what autistic persons are capable of. This type of prejudice continues to limit autistic experience and growth; it is dehumanizing and covertly assumes the notion that having a disability is a negative characteristic that needs to be mended. Abled people have to recognize that their disability is a major part of who they are as a person and trying to fully erase that part of their identity is insensitive. Looking inward towards ableist society and perspective can mend this awful misrepresentation of the autistic community and close the gap between neurotypical people and autistic people.
Word count: 1029
I pledge. Rosemary Pauley and Gina-Marie An
Works Cited
Braddock, David, and Susan Parish. “An Institutional History of Disability.” Disability at the Dawn of the 21st Century and the State of the States, 2002, pp. 11–68.
Murray, Stuart. Autism. Routledge, 2012.
Richard’s Final Exam Paper on Autism-Prompt #3
Richard Yeomans
Dr. Foss.
English 384-Section 01.
April 27, 2020
Word Count: 1225
Final Exam Essay: Prompt #3
In our society today, there is the beginnings of understanding for Autism and those who have been diagnosed on the Autism Spectrum. While we continue to see much misunderstanding within society at large, including those who fear Autism and parents who wish to blame their child’s diagnosis on an outside source such as vaccines, others chose to see the individual as a person instead of looking at them through a label from the spectrum. During the Great Depression of the 1930s, many states, including Virginia, utilized Eugenics programs as a means of punishing those whom the state saw as inferior genetically to the average person. In John Steinbeck’s Of Mice and Men, we see hints of the character Lennie having traits which lend him to be on the Autism Spectrum, and how society viewed him as a menace because of his intellectual challenges. George would get frustrated with Lennie at times throughout, only to then see that Lennie was keeping what George taught him to heart. Yet it reflects how both historically and in the modern day, there is still much which needs to be done to raise awareness and end the negative views towards those who have been diagnosed on the Autism Spectrum.
While the novella remains a popular story for many students throughout the country, there are those who identify with Lennie and his personality. Throughout the story, he is treated as a subhuman character by others, including George at times who treats him as a mere child and not an adult. One such example near the start of the story was when George discovered that Lennie had “rescued” a dead mouse and was keeping it in his pocket as a pet. When George had thrown it away a second time, he then heard Lennie begin to cry at the thought of no longer having the mouse. George talked down to Lennie by then saying “Blubberin’ like a baby! Jesus Christ! A big guy like you” (Steinbeck 9). Indeed, Steinbeck had even dehumanized Lennie at the very beginning, comparing Lennie to a bear when he described Lennie’s dragging of his feet while walking as “the way a bear drags his paws” (Steinbeck 2).
Because Steinbeck frequently describes Lennie by his appearance throughout the novella, the reader risks developing, or ratifying, notions that Lennie is not normal. This in turn risks a subconscious determination of seeing others in a negative light based solely upon their differences to what society considers a normal human being. During the Great Depression, the reader also would have been confused about how George and Lennie were even together, as the common practice of families back in that period was to send people with disabilities to an institution. But importantly, though George at times is harsh in his attitude towards Lennie, he does care about Lennie and wishes to prove society wrong about Lennie. Though he told Lennie to be quiet, it was likely due to George knowing that is Lennie had spoken upon arrival, the ranch would have sent them away out of fear and the labels of society towards people like Lennie. George, however, wishes to prove the ranch owner, and society in general, that Lennie is just as capable of hard work, or perhaps even more capable, than the average ‘normal’ person. While Lennie is a hardworking individual on the ranch, George must guide him throughout and remind Lennie of his tasks to avoid getting fired. Lennie in turn looks at George with trust and relies upon George to help him in his daily activities and decisions.
There are several aspects to Lennie’s behavior which lends credence to the idea that his condition falls upon the autism spectrum. He is frequently seeking out the repetitive behavior throughout the story of wishing to pet soft items, which can also be thought of as self-stimulating (Murray 14). As previously noted, he is introduced to the reader with a dead mouse in his pocket which he pets frequently ass he and George are walking along towards the ranch, with George then throwing the mouse away across the river, only for Lennie to walked across and recover the dead mouse whilst fetching wood for a campfire. When George then throws the mouse away for a second time, Lennie argues that it is a comfort for him, He tells George that he “wasn’t doing anything bad with it… Jus’ strokin’ it,” which is our first view into the repetitive and comforting behavior which Lennie seeks out (Steinbeck 9). The reader is then informed by George that Lennie had destroyed a stuffed toy mouse which had been previously given to him. This behavior is reinforced by Lennie being too hard on his petting and stroking of puppies, with another character on the ranch named Slim having suggested that Lennie take a break from petting the puppies, with Lennie explaining to George that Slim told him he “better not pet them pups so much for a while” (Steinbeck 54). To which Lennie eventually kills one f the pups by being too aggressive in his petting.
Lennie continues his desire to seek out and pet soft objects when he comes across Curley’s wife and starts petting and stroking her hair. Unfortunately, when he is told to stop by her, Lennie becomes anxious and fears that she will tell George about his forcibly petting her hair against her wishes, and that George will punish him by not allowing him to pet the rabbits on their future plot of land. He acts out in a panic and ends up killing her, which then causes the realization that George is not going to be happy with Lennie and will punish him.
In Stuart Murray’s book Autism, he notes that autism “isn’t in illness” and that that fact is “sometimes lost in the labeling of the condition as a ‘disease’” (Murray 36-37). He goes on to then explain that even in the modern society, people tend to fear and misunderstand autism due to the fear of the unknown. Though our understanding has improved, there are many parents and general members of society to this day who fear autism as a disease, and are wary of those who have been diagnosed on the higher end of the autism spectrum, while certain other parents feel self-blame in their child being autistic (Murray 59).
In closing, though we as a society have made great strides with the arrival of advocacy groups intent on educating the greater public and families about autism, in the hopes of a wider acceptance of people as being equal and normal with those who are not on the autism spectrum, especially when compared to the 1930s when individuals were simply hidden from society under the guise of being “feeble-minded,” we have a long way to go unfortunately in obtaining full acceptance and equal equity to all Americans whether on the spectrum or not. Though George did work hard to try and bridge the gap between Lennie and the other workers and the owner of the ranch, he did achieve some successes along the way before the end of the story, notably with Lennie being allowed to continue working instead of being sent off upon noticing that he wasn’t “normal” in the eyes of society. And continued work will be needed to ensure full integration and acceptance going forward.
I pledge…
-Richard Yeomans.
Works cited
Murray, Stuart. Autism. Leeds: Routledge, 2012.
Steinbeck, John. Of Mice andd Men. Penguin Books, 1937.
Madison’s Final
The History of Autism: A Shaky Foundation
To understand something in the present, it helps to look at its roots. The cultural ideas and stigmas that are held today are at least somewhat a product of history. Historically, autism has been a mystery and today there is still much we do not know about how it functions or where it comes from. However, when research first began to circulate surrounding autism, much of that information was inaccurate and ultimately harmed future understandings of autism, repercussions we are still feeling today despite advancements. The history of autism research can be seen as the driving force behind the apprehension parents have surrounding communicating with and building a relationship with their autistic child. As a result of early acclaimed researchers pointing a finger at the parents of autistic children to blame them for the condition, there has since been a culture which fears raising the autistic child and pushes for a ‘cure’ to end a presumed suffering.
Psychologists Leo Kanner and Bruno Bettelheim’s widely regarded ideas have laid the foundation for a problematic understanding of how autism functions and where it comes from. Up until the 1960’s, Kanner asserted the belief that parents are responsible for their child’s autism. Kanner once said in an interview that autistic children were a product of, “parents cold and rational who just happened to defrost long enough to produce a child” (Murray, 54). He believed that the parents of autistic children were cold and distant, thus producing similar traits in the form of their autistic child. Bettleheim held a similar viewpoint, asserting that autistic children “withdraw from the world” as a product of parents who are unable to bond with their child, and that often development was stunted in autistic children due to the parents’ own “inadequacies” (Murray 56-57). Given autism was largely unstudied and therefore not understood, Bettleheim and his work were regarded highly by the public and his opinions were taken as fact (Murray). The blame that was placed on parents by these researchers has heavily influenced the way parents today understand autism, and consequently, the apprehension they feel about building a relationship with their autistic child.
The responsibility placed on parents for causing their child’s autism coupled with the idea that a child is ‘trapped’ within their autism lead parents to push for the cure. The fact alone that blame or responsibility was placed at all reinforces that autism is not a positive presence, as if someone must be punished for its existence. And according to Kanner and Bettleheim, the blame lied with the parents. It is natural for parents to want to fix things for their child, to rid them of any suffering. Since there are inherent ideas of pain and suffering tied to disability and difference, including autism, parents have a tendency to focus on how they can end that suffering and return their child to normal. Murray writes, “For some, accepting that they were to blame was a price worth paying if it meant that their child could be ‘rescued’ from autism” (Murray, 58).The idea held that with therapy, the “lost” child could be “brought back” (Murray, 57). Of course this belief is harmful and inaccurate, as there is no “normal” child trapped within the autism, however the popularity of that notion leads parents to feel urgent about curing their child’s autism rather than trying to understand it as an inseparable piece of their identity.
The history of autism and the belief in the cure have made it easier for parents to focus their energy on who their child isn’t rather than who he/she is. Autism, much like other neurodiverse perspectives, is seen for its deficits first and foremost. Nonverbal and atypical communication is rarely seen positively, but rather as though something is lacking from the individual. This expectation of normalcy hinders parents amongst others from trying to understand autistic communication and build a relationship with the autistic child. Writers and advocates such as Jim Sinclair are helping to rewrite this history and alter the way we understand the autistic child. First, it is especially important that parents understand the inseparability of autism from the autistic child. Jim Sinclair importantly notes in Don’t Mourn For Us, “when parents say, I wish my child did not have autism, what they’re really saying is, I wish the autistic child I have did not exist, and I had a different (non-autistic) child instead” (Sinclair, 1993). Although these parents might not understand the implication behind their words, it does not change the fact that they are implying they would rather have a ‘normal’ child than try to understand and relate to their autistic son or daughter. Furthermore, it is important that parents are willing to forgo their own expectations of ‘normalcy’ in order to venture into their autistic child’s territory. He notes, “You’re going to have to give up the certainty that comes of being on your own familiar territory, of knowing you’re in charge, and let your child teach you a little of her language, guide you a little way into his world” (Sinclair,1993).
It is impossible to completely rewrite the history that is responsible for inaccurate information and ideas about autism, but we can learn to put what we think we know aside and step into the autistic perspective. Historically, parents have been blamed for what was presumed as a condition that caused their child to suffer and lack normal social and communication skills. There is no question that this past has been a catalyst for the apprehension parents still hold today about connecting and communicating with their autistic child. The belief in the normal child being ‘trapped’ and the cure have made it possible for parents to focus attention on autism as a deficit rather than a benefit. However, with more insight into the autistic perspective as shared by those on the spectrum such as Jim Sinclair, parents may be able to take agency and find the courage to meet their child where they are at. As noted, difference is not an “impenetrable wall” (Sinclair,1993), but communication can happen and relationships are more than possible.
Works Cited:
Murray, S. (2012). Autism (The Routledge series integrating science and culture). New York: Routledge.
Sinclair, J. Don’t Mourn For Us. Autism Network International newsletter, Our Voice, Volume 1, Number 3, 199.
word count: 1020
I pledge, Madison Moyer.
The Use of Literary Devices and Synchronization in dePack’s Troubleshooting
Understanding the thought process of people with disabilities is something that neurotypical people often struggle greatly with. It makes disables people seem alien to them, and often ignorance causes intolerance, which leads to people with disabilities being isolated from society and shunned as though they are less than human. Autism is a disability that many people do not know about, as well as one that many do not care to know about due to the nature of it, and how different autistic people act compared to the norm. People write them off as less intelligent or strange simply because it is something they cannot understand, nor do they often take the time to try. Because people with autism have such a different way of processing the world around them, it is easy to assume that there is no chance of understanding them, which can lead people to not even try, but the more time people spend with someone, the easier it is to figure them out and work with them. Selene dePackh’s novel, Troubleshooting throws the reader into the mind of an autistic character, Dax, with an auditory processing lag, and the writing style, use of context, and dialogue mimics the way that she must synchronize with people in order to be able to understand them.
The writing style that dePackh uses in Troubleshooting has an interesting way of jumping around timeframes in a way that causes a reader to be confused about where and when the scenes of the book take place, which mimics the confusion Dax must feel before she has processed what someone has said. It almost gives the reader a literary whiplash, switching back and forth from past to present, scene to scene, so quickly that the reader is only able to process what has happened about halfway through the page. Immediately upon opening the book with chapter one, the reader is put into the middle of a conversation between Dax and Chill, Angela Dark’s brother. They are playing some sort of game that the reader is given no context to. Before anything is fully explained, the narrator, Dax, then continues on to say that the conversation happened “a couple of decades ago” (dePackh 1). Dax implies that she is somewhere different in present, but instead of giving the reader any information about that, she starts to tell the reader about the past again, and how she came to meet Chill Dark instead. Then, from chapter two to chapter three, the narration skips from Dax telling Angela her background and how she got to Thunderbird to an explicit sex scene in chapter three, which shocks the reader, and seemingly comes forth with little warning to it happening. Just as the reader is starting to somewhat understand Dax and be solid in a scene with her and Angela talking, they are immediately thrown into something else with these same characters, but a completely different scene with a very different done. This sort of mimics the way that someone with an auditory processing lag may experience conversation—just as they process something that was said to them and tune back in, the conversation has gone completely elsewhere, and the process starts again.
Similar to the way the novel’s jumping around causes confusion, dePackh introduces information without context, which makes it impossible for the reader to understand, but as the novel progresses, more insight is provided as though the reader is getting synchronized with the book and can more easily understand things that are happening. On page two, we are given a few proper nouns with no context or backstory, as though these bits of information are important to the worldbuilding of the futuristic world this takes place in, but the reader is not clued into the significance of them. The “Dark family” is mentioned, but the reader does not yet know why they are important, as only two members of the Dark family have been mentioned. They are spoken about like they are infamous, but at this point in time, the reader does not know why. The nations “Haudenosaunee” and “Anishinaabe” are mentioned, but the reader is given no information as to what they are or told that they are nations of indigenous people, aside from them being near the Canadian border. The reader is left to their own devices, with the choice of either remaining in the dark or looking up the information themselves, which helps the reader to understand how it may feel like for Dax since she is unable to make sense of words upon first hearing them (dePackh 7). At the beginning of chapter two, the reader is introduced to Chill’s Uncle Gabriel, who is fixing Angela’s hair, but the reader is not given any information to why or how he is there, nor are they given any information about the setting they are in until halfway through the paragraph when the fence is mentioned to show that they’re in the yard, and then on the next page, the reader is informed that Uncle Gabriel is allowed regular visits. This creates a lag in understanding because the information is presented, and then explained with a sort of delay, creating a small window of confusion similar to what Dax may experience. However, as the novel progresses, we are given explanations of information sooner. One example of this is at the beginning of chapter eleven, with the phrases: “I was supposed to meet her at nine, and it was still a couple of minutes to, but it appeared she’d been there a while. I was learning Petra was a heavy drinker. She didn’t drink hard every day, but when she did, she meant business” (dePackh 93). Here, Dax is forthright with information and explaining the characters, even giving information that the reader may not necessarily need. The mention of Petra being a heavy drinker as well as Dax’s love interest at the time is even foreshadowing to her relationship with “The Mistake”, an abusive alcoholic who takes over her life for a while. Up until this point, the reader is thrown around through Dax’s life with little context or explanation to what’s happening, but here, there is a very noticeable change in the writing. Not only is the reader given a full explanation of the setting and characters in the scene, but there is also a hint to what is coming next, which had not happened, at least not noticeably, before this point, as though after reading the book for this long and struggling to process it, they are finally getting “synchronized” (dePackh 5).
Literary devices can be a powerful tool in writing. They can create all different tones and moods and bring the reader on a specific journey that is unique to each and every book. The way that dePackh uses these literary devices is important because it gives the narrator a voice that is specific to how she processes as a person with autism, and it helps the reader to understand that voice and gives them insight into her brain. Books like this show people that autism is not something that makes someone alien, but only something that makes them process a little differently, and it shows them that if enough time is spent with someone, then they are not so difficult to understand after all.
Word Count: 1223
I pledge I did not give or receive unauthorized help on this assignment
WORKS CITED:
dePackh, Selene. Troubleshooting: Book One, Glitch in the System. Reclamation
Press, 2018.
Tori Percherke’s Take-Home Final on Jim Sinclair’s “Don’t Mourn For Us”
Don’t Mourn For Us
In the literary text, “Don’t Mourn For Us”, is based on the perspective of somebody with autism, Jim Sinclair. Sinclair’s idea for this essay was to broadcast feelings to non-austic’s about the idea of a “normal child”. Reading this essay, I came to the conclusion that those who choose to have children, should be thankful for the child they bring into this world. If they aren’t, they weren’t made to be parents in the first place. Parents should not create expectations for their unborn baby, or feel at loss over what is real. Autism is a real, and beautiful thing.
Sinclair states in the beginning of this essay, that according to “non-autistic” people, autism is the “most traumatic thing to ever happen” to parents (1). However, parents who create all these expectations in their minds, is the real traumatic thing here. Although bonding and creating that relationship with your child will be different than most, it’s the parent’s job to form ways to bond with their kid instead of resentment. In the text, Sinclair responds to this sort of frustration by saying, “the child isn’t incapable of relating at all. It only means [the parent is] assuming a shared system, a shared understanding of signals and meanings, that the child in fact does not share” (1). Just like treating those with autism like somebody who speaks a different language, there are ways to communicate and relate. Parents just have to be open-minded to forming those different ways. If the parent is successful, and is patient with their son or daughter, the reality of their child getting a drivers licence or moving away to college is very likely. But, parents can not push their process with the child. It isn’t the job of the child to be a certain way for other people. And if the parent has a mindset of bitterness, anger, and negativity toward a child, it can create resentment against the parent. At the end of the day, a child is only a child. The kid cannot control what they were born with, let alone, what makes them, them! “Autism is a way of being” (1). Autism is different, and has too many negative connotations for this world: ignorance, disrespect, and the willingness to learn more about it. Instead of grieving about autism, express and explore the world in which autism gives. By providing that information toward the child, the child will learn how to be proud and happy of who they are! It’s understandable to be stressed, as there are always new things to be anxious about. But, if a parent feels as if they cannot hide those doubts, and significant emotions toward their child, they were not fit to be parents in the beginning. A parent is kind, and accepting toward their baby.
So, what does it mean to be a parent?: A parent takes care of their child physically and emotionally, a parent provides, a parent protects and keeps the child safe from harm, a parent loves, a parent teaches and helps their child when in need, and a parent is the role-model to their child (2). The definition of a parent is more than just giving birth and the passing of genes. It’s a role that the world has given them, and the world should expect the parent to treat their child or any child, with love and respect. Sinclair says that “[autistic children] need and deserve families who can see us and value us for ourselves, not families whose vision of us is obscured by the ghosts of children who never lived. Grieve if you must, for your own lost dreams. But don’t mourn for us. We are alive. We are real. And we’re here waiting for you” (1). The child in which has autism will help guide the parent in any confusion they might have. But, it’s the parent’s job to get connected in a community that supports autism. In order to help maintain a connection with an autistic child, the parent must learn to embrace the culture their child and family is involved in. Embrace the differences that the world has given!
In Sinclair’s final paragraphs, he tells the readers to “learn to let go” (1). Which is such a peaceful statement but also, a command. Having autism isn’t the same as losing a child. Because your child is alive, and real. The idea of having a normal child never existed. Having autism is what makes up a child to be unique and different from the rest. If those differences within a parent’s kid isn’t uplifted, how does a parent expect their kid to live a happy life? Or feel as if they can be loved by the world, if their own parents can’t? Sinclair shares that, “[Those with autism] need you. We need your help and your understanding. Your world is not very open to us, and we won’t make it without your strong support. Yes, there is tragedy that comes with autism: not because of what we are, but because of the things that happen to us. Be sad about that” (1). If parents need to rant about their emotions toward autism, there are support groups for that. The groups are meant to embrace what has happened, and what won’t change. Enrolling into support groups, and counseling will only benefit relationships with those of autism. Having a child that is on the spectrum, is more than a diagnosis, it’s an “adventure of a lifetime.” The parent’s duty is to be as involved as they possibly can, and to also love what they brought into the universe.
To conclude this analysis, I believe that after reading, “Don’t Mourn For Us”, parents who feel negatively toward their autistic child are in no place of being a parent at all. Parent’s are supposed to accept the child that they brought into this world, and treat them with the love and respect they deserve. I also believe that people should know what it means to be a parent before conceiving a baby. And finally, if a parent has an autistic child, it’s the families’ job to make sure that that culture is embraced and celebrated. Those with autism, unfortunately experience those families too often that aren’t loved equally as other children. The world needs to create a brighter and more positive connotation than the one it has today. If somebody wants to be a parent, they need to be thankful, and embraceful for the child they get. As Sinclair says, “Don’t mourn for us. Autism is alive, and real” (1).
“I hereby declare upon my word of honor that I have neither given nor received unauthorized help on this work.”
X Tori Percherke
Word Count: 1089
Work Cited:
(1) Sinclair, Jim. “DON’T MOURN FOR US.” Don’t Mourn For Us, www.autreat.com/dont_mourn.html.
(2) “What Does It Mean to Be a Parent: Gerber Life Insurance Blog.” Gerber Life Insurance Parenting Blog, 16 Jan. 2019, www.gerberlife.com/blog/what-it-means-to-be-a-parent/.
“What Is Autism?” Autism Society, www.autism-society.org/what-is/.
Tara Platenkamp’s Final Exam: The Difference Between Reading Autism and Reading While Autistic
The demand within autistic communities for autistic authors is high. How could it not be? Every person wants to feel that their voice is being heard, whether it is by their own words being delivered to the public or through a trusted proxy. For most of the existence of the literary community, however, autistic expression has been disregarded and treated as less valuable by scholars and audiences alike. Julie Miele Rodas and Ralph James Savarese provide in their books Autistic Disturbances and See It Feelingly, through alternative perspectives on autistic rhetoric, a comparative analysis on the existence and importance of viewing literature through a neurodivergent lens.
The first issue that becomes apparent when examining literature with autistic influence in mind is the oversight which happens to the expressions of actual autistic people. Both Rodas and Savarese discuss the general dismissal that occurs towards the alternative literacies that autistic people often use to communicate. For Savarese’s son, DJ, while his main forms of communication—writing and speaking—are themselves not unusual, the manner in which he is able to communicate is. Text-to-speech communicators are strange, if you’ve never been around someone who uses one, and many people become uncomfortable around synthetic voices, as well as the inevitable delay that occurs when a person has to type instead of speaking aloud. While not always intentional, it is not uncommon for neurotypical, able-bodied people to assume that because of his disability DJ lacks intelligence. The end result is that people like DJ, who struggle to communicate in the typical way, have their words and their thoughts devalued. Rodas describes the manner in which “even autism-positive literary scholars are prone to explain autistic verbal practices as literary deficits”, neatly summing up the way which even disability scholars can (whether maliciously or not) overlook or misunderstand the intent behind autistic language, applying a neurotypical film over an autistic person’s words to make them more palatable (Rodas 182). Not only this, but the existence of autistic authors is often overlooked or deliberately ignored due to a lack of clear evidence supporting the neurodivergence of accredited writers.
One of the most problematic assumptions that can be made about literature of merit is that none of it was written or influenced by autistic people. Rodas seeks to destroy this notion of neurotypical-until-proven-neurodivergent by not only identifying patterns of autistic thought and expression throughout the literary canon, but also attempting to remove the blinders of what counts as autistic language. Autistic people, Rodas points out, “embrace an infinite variety of varieties and expressive modes”, rather than being confined by strict rules that determine an exact criterion for autistic expression (Rodas 183). In fact, Rodas encourages “reaching” for examples of autistic influence in literature for the sake of seeking out intersectional connections between autism and all other walks of life (Rodas 192). She outlines that many forms of autistic expression can seem innocuous to the uniformed eye; listing, repetition, wordplay, silence, and more all hold a place in autistic artistic rhetoric. It is only once these motifs are ascribed to autism that they begin to carry a different weight. Rodas references the lists that appear in Jorge Louis Borges’ “The Analytical Language of John Wilkins” with the purpose of pointing out how “Borges’ tongue-in-cheek inventory speaks to both the apparent worthlessness of discretionary rhetorics as well as to their potential for intelligence, invention, even humor” (Rodas 188). The reason why literature is usually assumed to be written by neurotypical people is because autistic expression is presented as less functional and meaningful. By presenting literary works that exhibit motifs which can be related to autistic rhetoric, Rodas removes the boundary between notable works of literature and works of literature written by autistic people. Not only does Rodas disregard the invisible barrier of ableism, but she also shows that elements of autistic rhetoric and expression exist outside of the vacuum of literature written about and by autistic people. It is through this acknowledgement of autistic expression holding not only value, but also normalcy, that neurodivergent rhetoric is moved from the theoretical, othered position, to one which may encourage and be engaged with by neurodivergent indivudials.
The biggest distinction to consider when discussing the examination of literature through a neurodivergent lens is the difference between reading autism and reading while autistic. Rodas’s work focuses on reading literature while searching for autistic influences; Savarese, comparatively, illuminates the ways in which stories that are superficially unrelated to the topic of autism can affect a person who is autistic, both the good and the bad. Neither of these perspectives is problematic, but are, rather, two of the necessary viewpoints when tying autism to literature. Stories have two fundamental parts: the author, and the audience. By accounting for autistic influences both in how literature is formed and how it is received by autistic people can the full scope of neurodivergent presence literature be understood. Without both these perspectives being utilized, a foundational pillar of disability studies is lost. In Savarese’s prologue, DJ says that he “‘feel[s] characters’ feelings’” and is described as “screaming at the top of his own oxygen-depleted lungs” in response to a character from Jon Krakauer’s Into Thin Air dying. This intense empathetic response might seem unimportant in regards to the novel as a whole. However, DJ’s response speaks to a greater connection between themes of misunderstanding and abuse in literature and those that appear in the autistic community. DJ is upset by the death of Rob Hall not only due to his empathetic nature, but also the experiences he himself has gone through as an autistic person. Savarese explains the feelings of “extreme helplessness” portrayed in the novel that DJ identified with, as a disabled child in foster care left without any way to communicate (Savarese 21). The identification and understanding of autistic influence in literature, as Rodas does, are necessary for furthering an awareness of autistic rhetoric, but Savarese’s accounts of his son explains why encountering and encouraging neurodivergent voices matters. Despite the fact that reading can be a trial for DJ, Savarese describes the intense way that DJ “identified” with stories, and encountering such emotional trials and overcoming them eventually gave to way to a greater grasp over his own emotional state (Savarese 15). DJ, a writer in his own right, suggested that “real change is only possible when different thinkers free people to open their eyes to new ways of being”, a direct proponent of how vital it is for autistic rhetoric to be acknowledged not only within literature, but about literature.
Autism, as well as any form of neurodivergence, is not a simple condition with easily defined borders that can be understood at a glance. However, it is because of the vast number of possible expressions of autism that make recognizing and celebrating autistic rhetoric so important. Rodas and Savarese’s writing encompass the two most foundational parts of understanding literature through a neurodivergent lens by enumerating and examining the ways in which autistic rhetoric affects established literature, and the experiencing of literature by autistic people. The cycle of author to reader that their books provide allows for a fuller understanding of autistic rhetoric in a way that does not merely encounter neurodivergence but embraces it and allows it to thrive.
Word count: 1211
Sources:
Rodas, Julia Miele, and Melanie Yergeau. Autistic Disturbances: Theorizing Autism Poetics from the DSM to Robinson Crusoe. University of Michigan Press, 2018.
Savarese, Ralph James. See It Feelingly: Classic Novels, Autistic Readers, and the Schooling of a No-Good English Professor. Duke University Press, 2018.
Mackenzie’s Final Paper
Mackenzie King
ENGL 384: Section 01
Dr. Foss
28 April 2020
The Autistic Voice
Defining autism causes much debate among self-advocates and medical professionals. The Oxford English Dictionary defines autism as “a condition which has its onset in childhood and is marked by severely limited responsiveness to other persons, restricted behaviour patterns, difficulty with abstract concepts, and usually abnormal speech development” (Rodas 9). The Diagnostic and Statistical Manual of Mental Disorders (DSM-5) gives an even more unclear definition of what it labels as “Autism Spectrum Disorder” as it gives medical professionals diagnostic criteria in the form of rigid categories. The problem with these diagnostic criteria is that autism presents itself differently among individuals. Some people with autism will show very little or no verbal communication while others may have perfect verbal skills. Many of the definitions or attempts to label autism come from sources who do not fully understand the autistic experience. Ari Ne’eman’s “Dueling Narratives: Neurotypical and Autistic Perspectives About the Autism Spectrum” and Julia Miele Rodas’ Autistic Disturbances: Theorizing Autism Poetics from the DSM to Robinson Crusoe demonstrate how damaging labels are continuously promoted as people with autism are placed in the background of these discussions.
Autistic writers will typically describe autism by feelings, experiences, and practices instead of through rigid categories. Then, autism is “what it feels, does, experiences, and says” (Rodas 10). This puts the autistic person at the center of the definition, not just categories of diagnostic criteria. Rodas notes that autism scholars will usually resist strict definitions of autism because no one truly knows what autism is. While autism is likely physically located in the body, there is no blood test or specific genetic marker that signifies autism. In this respect, the autistic body cannot be separated from the autistic voice. In “Dueling Narratives: Neurotypical and Autistic Perspectives About the Autism Spectrum” Ari Ne’eman states that “in a society that values equality as a means of social justice, the idea of each individual created equal is often misinterpreted as each individual created the same” (Ne’eman). Self-advocates continue to strive for support and acceptance for people with autism in society. Disability is thought of as a social construct. According to this social model of disability, the label of disability then reflects how an individual is able to function in a specific environment and is then not related to any intrinsic characteristics related to the individual. This means thant people labeled as having a disability are being defined by their relation to the rest of society, taking the ability to form an identity away from these individuals.
When it comes to discussions about autism, people with autism are generally not in the center of the discussion. Films like Autism Every Day (2006) furthers the idea that autism happens only to people surrounding the person with autism. This places all of the power for form identity in the hands of non-autistic hands and not in the individual. Lauren Thierry, the producer of this film, criticized President Bush for taking a photograph with a young man with autism who scored repeatedly during a high school football game and received a lot of media attention because of his talent. Theirry stated that this sent a message that people with autism will be okay as long as they can find a certain skill in which they can excel; however, she had also told the parents depicted in her film not to provide any type of therapy for their children or maintain their homes in the few days leading up to filming. This then promoted the idea that autistic children can be seen more as tradegies, further encouraging the notion that autistic children will fall into one of two categories: tragedies or prodigies. This is not an accurate representation of the reality of most people with autism, but films such as Thierry’s Autism Every Day are motivated by fundraising instead of accurate portrayals of living with autism (Ne’eman).
Jenny McCarthy further promoted the idea of autism as pathological with her memoir Louder Than Words (2007). In her book she portrays autism as a tragedy when her son receives his autism diagnosis. Actions she previously thought were cute soon became signs of autism and represented something she now views as tragic. Because of her high profile she became popular in autism discourse, furthering the idea of autism as pathology. The describes learning about her son’s autism by saying that all of the “things I’d thought were personality traits were in fact autism characteristics, and that was all I had. Where was my son, and how the hell did I get him out?” (McCarthy 66 qtd. Rodas 16). Again, this reaction illustates the inability to look at the individual. Jenny McCarthy’s entire view of her child is altered by his diagnosis. Her son is not trapped by his diagnosis, it is a part of his identity. When the people around someone with autism try to create a label or define who that person is based on the diagnosis, it takes that person’s voice and individuality. Autistic people, just like people who do not have autism, are able to express themselves in a variety of ways and through a variety of identities (Rodas).
The diagnostic criteria present austism as something that is categorical and easily defined, but that is not the reality for many people with autism. Autism affects people differently. These categorizations make it easier to try and place people within the label of autism, but this then takes the voice away from those individuals. Organizations, such as Autism Speaks, or films such as Lauren Thierry’s Autism Every Day continue to set the tone that autism is a condition that needs to be treated. These are not accurate representations of life for many autistic individuals and futher promote the labels given to autistic individuals from non-autistic sources who do not truly understand the autistic experience. Self-advocates are correct in their pushing to be at the center of discussions on autism, not merely placed into the background while non-autistic people place labels and make assumptions about what it means to be autistic.
Word count: 1004
I hereby declare upon my word of honor that I have neither given nor received unauthorized help on this work