Rachel, James, and Lueden’s Final Paper

Rachel Mullins, James M Pryor, & Lueden Sheikhnureldin

Dr. Foss

ENGL 384-02

April 28,2020

Autism in Popular Culture 

Prompt #2

In popular media representation such as on television and film, Autistic characters are overwhelmingly portrayed as males, specifically white males, and while there is a small percentage of Autistic female characters, they are also white. Visual media greatly lacks representation for Autistics of color. These shows and movies lack input from the Autistic community and are usually based on stereotypes which results in not only every character in these shows and movies being virtually the same, but also enforces the notion that only white people are Autistic. This stereotype is extremely harmful for Autistic people of color because they are invalidated constantly and can feel like there is no place in the community for them (Giwa-Onaiwu xiii). Another trope derived from the lack of Autistic input in these shows and movies is that these Autistic characters are usually there to simply ‘teach’ a non-Autistic person how to be kind, and they more likely than not have some sort of ‘bizarre’ talent or interest that is supposed to show how amazing Autistic minds are. While on the surface it sounds like acceptance, in reality it pushes the idea that an Autistic person needs some special skill to validate their existence. These negative representations of autism in movies and TV shows led to Autistic people not relating to canonly Autistic characters, but instead saying characters that they relate to or like are Autistic as a way of saying that if those characters were explicitly stated to be Autistic, they’d be better representations than what is shown now. Visual media representation is extremely important because this is where people get most of their ideas and beliefs, so by showing bad representation, it leads to harmful misconceptions of the Autistic community and makes Autistic people feel unrepresented (Ne’eman).  If creators of these television shows and films used Autistic input, there would be less perpetuation of these stereotypes and more diverse representation for Autistic people.

A character that is considered the ‘blueprint’ for Autistic characters is Raymond ‘Ray’ Babbitt from the movie Rain Man. Raymond fits the stereotype for Autistic people greatly. He is a white male, is an extremely fast counter which is his ‘bizarre’ habit or trait, and as argued by many critics, his autism is not for representation, but is one of the many stories of how autism affects neurotypicals instead of how it affects Autistic people (Ne’eman). Raymond’s character is also not played by an Autistic actor. The inspiration for Raymond’s character was inspired by a man named Kim Peek who did not have autism, but had savant syndrome (Treffert). While Peek seemed to be in support of this character and this movie, this film is the cause of a lot of misconceptions of autism such as all Autistic people being savants and that autism is only present in white men. Furthermore,  having a non-autistic person portraying an Autistic character makes autism seem like it is not a valid identity, but instead something one can just ‘pretend’ to be and turn on and off when needed. Having an Autistic actor is the best option for better representation because it shows how autism is a real, lived experience. A character that is the product of Autistic input is Julia from the popular kids’ show, Sesame Street. Julia is an Autistic little girl and was added to the main cast as a way to promote diversity and so Autistic fans of the same show could have a character to relate to. Julia was created with input from Autistic people such as the Autistic Self Advocacy Network who helped workshop her (ASAN).  Julia was a revolutionary character, until Sesame Street partnered with Autism Speaks, an organization known for speaking over Autistic people and treating autism as something to be fixed. This completely undermined everything Julia stood for and took Julia from being great representation to another Autistic character whose sole purpose is to ‘help’ neurotypical people. What happened to Julia is more proof of how neurotypical people ruin Autistic representation for Autistic people. 

In Ari Ne’eman’s Dueling Narratives: Neurotypical and Autistic Perspectives About the Autism Spectrum, he brings up several points on how parents and doctors damage the Autistic community with the way they talk about autism; saying falsehoods such as how autism “steals” children, ruins families, and is something that only people who are close to Autistic people ‘truly’ experience. Inevitably, these false narratives are translated into the media. Since autism is so villainized, these characters are portrayed as pitiful and helpless. This reason is why the savant trope is so problematic because it tells the audience that Autistic people are to be pitied, but ‘at least’ they have this talent going from them. These narratives are exceptionally harmful to Autistics of color. Neurotypical people do not get their input from Autistic people, so they make these narratives based on what they know instead which leads people of color not being accounted for in these narratives. Morénike Giwa Onaiwu’s Autistics of Color: We Exist…We Matter describes her experience as an Autistic Black woman and how both her identities have been invalidated. Some would say she is too Black to be Autistic and too Autistic to be Black. Autistics of color are only represented when they need to be seen as sad stories and examples for the community to not exclude them (Giwa-Onaiwu xii). They are rarely represented in the way white Autistic people are as people with interests and positive lives. Her experience with ableism and racism as an Autistic Black woman can be linked to the fact that Autistics of color are never seen in visual media (Giwa-Onaiwu xv). Bad representation is a vicious cycle in this case. Lack of Autistics of color in visual media leads to people thinking that people of color can not be Autistic which leads to more media without Autistics of color. This is why Autistic people being the actors, writers, creators, etc. is so important. More autistic people putting their lived experiences into something leaves less room for misconceptions and damaging stereotypes.

One positive from having stereotypical characters, is that Autistic community has found comfort in calling characters that are not canonly Autistic, autistic (Mullins). Many Autistic people had found the representation they were being given extremely offensive and found that there were many characters who were not explicitly stated to be Autistic to be much better representations than what they are given. Some of these characters are considered to be autistic coded which means the character is Autistic, but not stated by the creator for various reasons or based on an Autistic person (Mullins). While this can be a very empowering way to interact with ableist popular culture, it has its own issues such as white characters more likely to be coded as Autistic by fans than non white ones. White Autistic people can be just as guilty as white neurotypical people for the exclusion of Autistics of color (Giwa-Onaiwu xi). The problem lies in the fact that there is not enough Autistic created content or input being put into the mainstream pop culture which causes this aforementioned vicious cycle of bad representation. 

Autistic representation in visual media is run by neurotypicals for neurotypicals instead of being by Autstic people for Autistic people.  The harm these movies and television shows do  have real world effects. The idea of autism affecting neurotypical people exclusively is only enhanced by these representations. Autistics of color being viewed as non existent is backed up by them never being what people see in movies and film. Autistic people are represented as white men who have one particular interest and if someone does not fit that image, then they can not be Autistic (Giwa-Onaiwu xv).  The lack of Autistic voices causes the rise of neurotypical stories being told under the guise of Autistic stories. By not having Autistic representation that Autistic people can resonate with, they are given Autistic representation that neurotypical people can take and bend for even more damaging narratives (Ne’eman).  By having more Autistic people being involved with the making of these TV shows and films, the neurotypical narratives would diminish greatly. Autistic people are not plot material and devices; autism needs to be shown as a valid identity and not simply something non autistic people experience and are completely changed by. The Autistic voice in the media should belong to Autistic people, so their stories are not told as sob stories or cure seeking.

Word Count: 1,408

We pledge

Works Cited

ASAN. “ASAN Has Ended Partnership With Sesame Street.” Autistic Self Advocacy Network, 2 Aug. 2019, autisticadvocacy.org/2019/08/asan-has-ended-partnership-with-sesame-street/. 

Brown, Lydia X. Z., and Morénike Giwa-Onaiwu. “Autistics of Color: We Exist…We Matter.” All the Weight of Our Dreams: on Living Racialized Autism, DragonBee Press, 2017, pp. X-xxii.

Mullins, Christa. “Reflection: Autistic-Coded Characters and Fans in Fandom.” Canadian Journal of Disability Studies, vol. 8, no. 2, 2019, doi.org/10.15353/cjds.v8i2.495.

Ne’eman, Ari. “Dueling Narratives: Neurotypical and Autistic Perspectives About the Autism Spectrum.” The Society for Critical Exchange , 2007, case.edu/affil/sce/Texts_2007/Ne’eman.html.

Treffert, Darold. “Rain Man, the Movie / Rain Man, Real Life.” Agnesian, 2017, ttps://www.agnesian.com/blog/rain-man-movie-rain-man-real-life.

Cayla Stroud’s Final Examination

Intersection of Autism and Race

In Morenike Giwa- Onaiwu’s Autistics of Color: We exist We Matter someone asked her the question, “Autism is Autism right? Does race really matter?” Her argument was that the impression was becoming seemingly apparent that disability, in particular Autism, was overlooked and seen as a  collective experience, not interested with the intersection of race, gender, or sexuality. Furthermore that the discussion of race as it pertains to autism is silenced. It is of great importance that we are to examine the lives affected by both the impact of race and disability matters. Moreover, when one is asked to “simplify” themselves or experiences it is an attempt to invalidate one’s identity and voice. 

I’d like to start by breaking down the frequent statement that was made by Giwa-Onaiwu’s friends, colleagues, neighbors and people who care about her have asked, “Autism is Autism right? Does race really matter?” (Giwa-Onaiwu x). First Autism is not just Autism, there is a spectrum. As John Sinclair stated in “Don’t Mourn For Us”, “Autism is a way of being. It is pervasive; as it colors every experience, every sensation, perception, thought, emotion, and encounter, every aspect of existence”. Which speaks to the notion that the Autism spectrum has a broad set of experiences, that each individual experiences differently. With this being said it is best to ask someone, how he/she prefers to be addressed, as Autistic people are capable of communicating and understanding. As DJ Savarese mentions in his piece “Communicate with me” where he describes his subjective experience with Autism and how people can freely talk to him. It is also important to see Autistic people as whole, with an identity, and not disconnecting their identity from themselves. As Autism is commonly believed to be a disease in which, if it were to be reversable a person would then be a different, “normal” person. As John Sinclair writes, Autism is not a “shell” that a person is trapped inside and there is no “normal” person hidden behind Autism. To rid someone of disability is ultimately a way to dehumanize, erase, and diminish that individual.  

To further break down the statement, “Autism is Autism right? Does race really matter?” Not everyone’s experiences as it pertains to race is the same. As Onaiwu’ spoke about her experience from childhood,

 “I remember helplessly trying to explain to my biracial cousin why I didn’t ‘have it easier’ than her merely because I was monoracial … Her assumption was that I was ‘luckier’  than her because I looked ‘black’… because I ‘looked apart’. I was supposed to automatically understand and be fluent in all these random aspects of life attributed to black American culture” (Giwa-Onaiwu xiv).

As Giwa-Onaiwu suggested the particular contention with how a person is viewed within a particular minority. Also,  how her white counterparts would deem her credible to know every aspect of African American culture even though she did not and was, but in the African American community she was considered “not black enough” because of her speech and mannerisms. Employing that she was supposed to inherently eat a certain way, dress a certain way, and act a certain way in order to be seen as black. When the real reality is, there is no singular way to be any race and experiences are different from individual to individual. 

In addition, she is also Autistic, as she felt there was no place of belonging, others understanding her, or accepting her. It was as she said, she was in a minority group within a minority group within a minority group. Explaining that her experience with her race and disability was just another barrier for her to find her place in society. Which is why the intersect of Autism and race have everything to do with one another.

It is an ableist view of disability to think that disability is no way intertwined with race, furthermore as Giwa-Onaiwu explained it is an obscure reality of their own intrinsic privilege with regard to race and ability (Gina-Onaiwu xi). That once an individual ignores those factors you are then not focusing on the subtitle differences that a person faces within a minority group, within a minority group, within a minority group. As Onaiwu stated, “We –those of us who exist at the intersection of disability and race aren’t treated as if we are real” (Gina-Onaiwu xii). She explains that the factors that affect those who are at the intersection of race and disability are paid little concern to. It is a grave injustice to separate the very aspects of someones lived experiences, while one can experience them simultaneously. 

As E. Ashkenazy offers ways to address these issues and bring them to the forefront she offers the most valuable source of advice to “Listen to and welcome the stories and insights that autistic people of color have to share with us” (Ashkenazy xxxviii). Because not all Autistics share the same shared experiences and nor do people of color. Because in this way, it is a way to shed light on culture, home lives, family, and the lived experiences of who people are at the intersection of disability and race and not base broad and ignorant assumptions on others. In addition, as Ashkenazy emphasizes it is our social responsibility to ask people how they identify, instead of assuming and getting to know people instead of clumping them into one category (Ashkenazy xxxix). It is being able to slow down and think about the stereotypes and misunderstanding that we are perpetuating, because it can lead to insightful and meaningful conversation embracing the mixed and intricacies of autistic people of color.

Works Cited 

Brown, Lydia X. Z., and Morénike Giwa-Onaiwu. “Autistics of Color: We Exist…We Matter.” All the Weight of Our Dreams: on Living Racialized Autism, DragonBee Press, 2017, pp. X-xxii.

Sinclair, Jim. “Don’t Mourn for Us..” Autonomy, the Critical Journal of Interdisciplinary Autism Studies [Online], 1.1 (2012): n. pag. Web. 2 May. 2019


Savarese, DJ. “Communicate with Me.” Disability Studies Quarterly, 2010, dsq-sds.org/article/view/1051/1237.

Word count: 1006

I Pledge, on my honor.

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