Cayla Stroud’s Final Examination

Intersection of Autism and Race

In Morenike Giwa- Onaiwu’s Autistics of Color: We exist We Matter someone asked her the question, “Autism is Autism right? Does race really matter?” Her argument was that the impression was becoming seemingly apparent that disability, in particular Autism, was overlooked and seen as a  collective experience, not interested with the intersection of race, gender, or sexuality. Furthermore that the discussion of race as it pertains to autism is silenced. It is of great importance that we are to examine the lives affected by both the impact of race and disability matters. Moreover, when one is asked to “simplify” themselves or experiences it is an attempt to invalidate one’s identity and voice. 

I’d like to start by breaking down the frequent statement that was made by Giwa-Onaiwu’s friends, colleagues, neighbors and people who care about her have asked, “Autism is Autism right? Does race really matter?” (Giwa-Onaiwu x). First Autism is not just Autism, there is a spectrum. As John Sinclair stated in “Don’t Mourn For Us”, “Autism is a way of being. It is pervasive; as it colors every experience, every sensation, perception, thought, emotion, and encounter, every aspect of existence”. Which speaks to the notion that the Autism spectrum has a broad set of experiences, that each individual experiences differently. With this being said it is best to ask someone, how he/she prefers to be addressed, as Autistic people are capable of communicating and understanding. As DJ Savarese mentions in his piece “Communicate with me” where he describes his subjective experience with Autism and how people can freely talk to him. It is also important to see Autistic people as whole, with an identity, and not disconnecting their identity from themselves. As Autism is commonly believed to be a disease in which, if it were to be reversable a person would then be a different, “normal” person. As John Sinclair writes, Autism is not a “shell” that a person is trapped inside and there is no “normal” person hidden behind Autism. To rid someone of disability is ultimately a way to dehumanize, erase, and diminish that individual.  

To further break down the statement, “Autism is Autism right? Does race really matter?” Not everyone’s experiences as it pertains to race is the same. As Onaiwu’ spoke about her experience from childhood,

 “I remember helplessly trying to explain to my biracial cousin why I didn’t ‘have it easier’ than her merely because I was monoracial … Her assumption was that I was ‘luckier’  than her because I looked ‘black’… because I ‘looked apart’. I was supposed to automatically understand and be fluent in all these random aspects of life attributed to black American culture” (Giwa-Onaiwu xiv).

As Giwa-Onaiwu suggested the particular contention with how a person is viewed within a particular minority. Also,  how her white counterparts would deem her credible to know every aspect of African American culture even though she did not and was, but in the African American community she was considered “not black enough” because of her speech and mannerisms. Employing that she was supposed to inherently eat a certain way, dress a certain way, and act a certain way in order to be seen as black. When the real reality is, there is no singular way to be any race and experiences are different from individual to individual. 

In addition, she is also Autistic, as she felt there was no place of belonging, others understanding her, or accepting her. It was as she said, she was in a minority group within a minority group within a minority group. Explaining that her experience with her race and disability was just another barrier for her to find her place in society. Which is why the intersect of Autism and race have everything to do with one another.

It is an ableist view of disability to think that disability is no way intertwined with race, furthermore as Giwa-Onaiwu explained it is an obscure reality of their own intrinsic privilege with regard to race and ability (Gina-Onaiwu xi). That once an individual ignores those factors you are then not focusing on the subtitle differences that a person faces within a minority group, within a minority group, within a minority group. As Onaiwu stated, “We –those of us who exist at the intersection of disability and race aren’t treated as if we are real” (Gina-Onaiwu xii). She explains that the factors that affect those who are at the intersection of race and disability are paid little concern to. It is a grave injustice to separate the very aspects of someones lived experiences, while one can experience them simultaneously. 

As E. Ashkenazy offers ways to address these issues and bring them to the forefront she offers the most valuable source of advice to “Listen to and welcome the stories and insights that autistic people of color have to share with us” (Ashkenazy xxxviii). Because not all Autistics share the same shared experiences and nor do people of color. Because in this way, it is a way to shed light on culture, home lives, family, and the lived experiences of who people are at the intersection of disability and race and not base broad and ignorant assumptions on others. In addition, as Ashkenazy emphasizes it is our social responsibility to ask people how they identify, instead of assuming and getting to know people instead of clumping them into one category (Ashkenazy xxxix). It is being able to slow down and think about the stereotypes and misunderstanding that we are perpetuating, because it can lead to insightful and meaningful conversation embracing the mixed and intricacies of autistic people of color.

Works Cited 

Brown, Lydia X. Z., and Morénike Giwa-Onaiwu. “Autistics of Color: We Exist…We Matter.” All the Weight of Our Dreams: on Living Racialized Autism, DragonBee Press, 2017, pp. X-xxii.

Sinclair, Jim. “Don’t Mourn for Us..” Autonomy, the Critical Journal of Interdisciplinary Autism Studies [Online], 1.1 (2012): n. pag. Web. 2 May. 2019


Savarese, DJ. “Communicate with Me.” Disability Studies Quarterly, 2010, dsq-sds.org/article/view/1051/1237.

Word count: 1006

I Pledge, on my honor.

Samantha Rogers & Taylor Butlers final paper on Autism illustrated through literature

            DJ Savarese’s poem Alaska and Mary Shelley’s Frankenstein are comparable in that both main characters in the texts struggle with communication.  The creature, made by Victor Frankenstein, is depicted as a monster that is not quite human. Once the creature becomes aware of his hideous appearance, he feels lonely and isolated. Much like the creature, DJ Savarese feels isolated. Although DJ’s outward appearance does not exhibit scary features, his lack of communication skills affect his interaction with others. Due to being autistic, DJ struggles to communicate and sometimes relies on a facilitator to guide him along. Even though DJ has assistance and support from facilitators, he is aware that he lacks support from others. In regards to the creature, Victor Frankenstein can be seen as the creature’s facilitator, as Victor is the only one who truly understands him. However, differently from the facilitator’s mentioned within DJ Savarese’s poem, the creature’s facilitator does not support him. Within both texts, it is evident that communication barriers have an impact on the both creature and DJ Savarese, as they seek to remove themselves from feelings of isolation.

            Mary Shelley’s Frankenstein, is a novel that displays the struggles that the main character, Victor, must face. His creation is much different than the other characters within the book. The creation becomes aware of his repulsive appearance and his lack of communication skills, produces rage. Wanting to learn to communicate like a human, the creation observes a family from the outside. After constantly being reminded of his scary and ugly outward appearance, the creature craves the company of someone like himself. Wanting a female companion to be created for him, the creature seeks Victor with hopes that he will do so. Victor’s refusal to create a female companion leads to escalating aggression within the creature. Isolated and unlike anyone/anything else, the creature uses violence to make his voice heard. The creature’s struggle in being different and unable to communicate with others is comparable to DJ Savarese’s poem Alaska.

            Alaska by DJ Savarese is a poem that illustrates a struggle with communication through the use of metaphor; like Mary Shelley in Frankenstein.  The poem begins with the following quote, “hours of light like heat hibernating, great icebergs hear the cries of the hurt just like they’re trying really, really to be free” (Savarese, 279).  The light could metaphorically mean the light that is inside of an individual with autism, being trapped by society.  This displays how society dehumanizes people with autism and places them into a box. The iceberg metaphor may symbolize facilitators, in which they are able to hear the desire to be free; free to be whom they are. The facilitators are assistive and are able to sympathize with the individuals for who they really are and what they desire most; which in this poem is freedom.  The entirety of the first line may be compared to Frankenstein’s creation and what he endures throughout the novel.  The iceberg in Frankenstein could represent the old Mr. De Lacey.  There are other lines throughout the poem that are representations of the creature in Frankenstein.

While reading the poem, the line, “they try to yearn from freedom but they fear it” linked back to what the creature struggles with in Mary Shelley’s Frankenstein, (Savarese, 279).  The above quote also explains how others can view individuals with Autism and then not understanding their responses.   The word “fear” in the poem means it is the fear of someone not understanding a person with Autism if they are not facilitated in some way.  The word “hurt” also appears quite frequently, which could be interpreted as the hurt/frustration that DJ feels when people judge him or are not patient with him simply because he has Autism. The wording and analysis of the poem coincides with that of Frankenstein’s creation.  The creature feels akin to DJ because of the way he is treated by Dr. Frankenstein, the De Lacey’s, the townspeople, and many more.

            DJ Savarese, an autistic individual, discusses communication in Cultural Commentary: Communicate with Me.  He describes the issues he suffers without his facilitator as well as the proper steps in order to de-escalate from certain situations.   Savarese describes how the people around him do not understand how to communicate with him.  Savarese addresses questions that he is asked frequently such as, “If you don’t know me very well, can you just start talking to me? Yes, but I might act like you’re not there at first. It takes dear, real self-time to tell my breaking-the-barrier heart to quit pounding so loudly, so I can respond” (Savarese 2010).  Savarese’s main point in his commentary is that nobody around him understands his plight.  The type of communication that is being discussed can also be seen in Mary Shelley’s Frankenstein. 

            Frankenstein’s creation, who can be perceived as an autistic individual, who is initially rational, but when communicating his thoughts, he tends to struggle.  The creature feels unhappy and depressed because no one around him understands his wants or needs.  Dr. Frankenstein’s first reaction was awful, solely because he did not know how to address the creature, nor how to communicate with him.  The narrator confirmed that the facilitator does not do everything for them, but that they play a major role in making sure that he is calm. When he is not calm, the facilitator provides comfort and is able to communicate in ways that do not require speaking, like sign language.  In a way, the De Lacey family is the creation’s facilitator.  

Even though the family is horrified by the creature’s appearance and the fact that the creature was touching old Mr. De Lacey, Felix brutally attacks the creature, while Agatha screams; neither of which are positive methods of communication.  Old Mr. De Lacey is the only character that shows no prejudice due to his blindness, he was not able to see the creature’s appearance.  The family poses as the creature’s facilitator even without the awareness of his existence, regardless of the distance, they still helped him in many ways.  The main characters, as well as the townspeople, whom he encounters lack communication because they do not understand his needs.

            In Mary Shelley’s Frankenstein and DJ Savarese’s poem Alaska, communication barriers are evident. Within Frankenstein, Victor Frankenstein creates a creature that is vastly different from the human race and is not what he expected. Its ugly and scary appearance frightens others, leaving the creature feeling angry and isolated. Similar to the creature, DJ Savarese struggles with the ability to communicate in a “normal” manner, due to being autistic. In both texts, individuals are seeking support and to be removed from isolation. Although DJ Savarese has difficulties communicating, he does have support and guidance from facilitators, which is not the case for the creature. The creature, on the other hand, is seen as frightening and is not supported by his creator, which leads to aggressive behaviors towards Victor and his family members. Within both texts, it is evident that communication barriers have an impact on the creature and DJ Savarese, as they seek to find support from others.

Works Cited

Savarese, DJ. “Communicate with Me.” Disability Studies Quarterly, 2010, dsq-sds.org/article/view/1051/1237.

Savarese, Ralph James. “Alaska.” Reasonable People: a Memoir of Autism and Adoption. New York: Other Press, 2007. Pp. 279.

Shelley, Mary. Frankenstein, Electronic Text Center, University of Virginia Library, web.archive.org/web/20110207085418/etext.lib.virginia.edu/etcbin/toccer-new2?id=SheFran.sgm&images=images/modeng&data=/texts/english/modeng/parsed&tag=public&part=19&division=div1.

Honor Pledge: Taylor Butler and Samantha Rogers

Word count: 1278

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