Allison Palmer

Dr. Foss

English 384-02

30 April 2020

Labeling Autism

The world consists of labels, whether on products or regarding people. Human beings create labels to identify things or create their own identification of other people. However, labeling other people can lead to misinterpretations of someone, offending someone, and is simply morally inappropriate. Labels are more often than not are inaccurate and create a misrepresentation of that person being labeled as well as offend them since they are usually negative. No matter what, labeling someone is usually morally wrong because it puts someone into a small box limited by that label and can tear someone down.There is a negative association already when it comes to Autism, however then non-autistic people label autistic individuals, enhancing the negativity surrounding Autism. The labels are inaccurate, inappropriate, and hurtful; they also place people with autism into a small group and definition about who they are.  Tito Rajarshi Mukhopadhyay’s poem “Misfit” and Craig Romkema’s “Perspectives” mention being labeled by people regarding their Autism and the negative feelings tied to those labels. This paper will analyze how non-autistic people label people with autism, misinterpretations of Autism and how it impacts Autistic people, as well as the connotations involving Autism. Mukhopadhyay, Romkema and even Jim Sinclair’s “Don’t Mourn Us” alludes to the impact labels have on these individuals and how they should simply be treated and viewed as a human being because that is who they are. 

Craig Romkema’s “Perspectives” is a poem that includes an autistic speaker who goes through his life facing being studied, labeled and intentionally omitted. Romkema shows the speaker being “diagnosed” or “helped” when the “Psychologists used to blame it on “refrigerator mothers”, Optometrists prescribe special exercises and glasses, Researchers recommend vitamin A.” He highlights the idea that doctors, or just people in general attempt to blame or find a way to “fix” autistic individuals as if it is this terrible thing that was caused by something terrible and needs to go away simply because they are unique. Some people are uncomfortable with anything that is not similar to themselves and they are afraid of anything that slightly differs, therefore, they think that it is an issue that needs a cure. When in reality it is simply who someone is, Sinclair addresses this in “Don’t Mourn For Us” when he says “Autism isn’t something a person has, or a “shell” that a person is trapped inside.” It is not something someone is stuck with or something that covers up someone’s “normalcy”, it is who they are and it does not need to be cured. 

The poetic speaker in Romkema’s poem has labels placed upon him by non-autistic people and indicates how he feels regarding the labels; these moments of labels and his perspective is relevant to how other autistic people are labeled. In a moment he mentions how some do not acknowledge his ability and ignore the fact that he understands them “So freely did they label me retarded. Or some other variant, equally untrue.” They made a quick judgment about his abilities and attempting to create him as an outcast by devaluing his abilities and pretending he could not understand. Then similarly how they made a judgment based on his abilities they labeled him a degrading, inappropriate, inaccurate and negative word in order to devalue him even farther. This is how autistic individuals are labeled everyday, with negative terms that devalue their abilities and them as people. Some people label people with autism because they like to have the upper hand on others, especially people with disabilities who they see as easy targets in taking their power; they are ignorant and are power hungry. However, Romkema even states how inaccurate these various labels are because they are simply judgments to knock autistic individuals down to a powerless position; they do not define who they are as individuals and are not even close to the truth. 

The speaker grows towards the end of the poem and gains ownership over who he is despite the labels placed upon him his entire life. Romkema states that he is “Not startlingly different in appearance or habits from that little boy so willingly labeled.” He is still outwardly similar to the little boy who was mislabeled except now he can participate in discussion posts, vote, and share his opinions. He rises above those labels with his voice and he owns who he is, showing that he is more than he appears and labeled to be. He states “now my mind is free ”, he is finally free of the labels because of his abilities and the voice he has to share his story and the accuracy. The suggestion of being free suggests the freedom autistic individuals lack due to the labels they are given because they are not free to be themselves because someone else is deciding who they are. The poem also suggests that one way to reach freedom is to own their voice and own who they are.

Mukhopadhyay’s “Misfit” and Romkema’s “Perspectives” parallel each other through the poetic speaker being an autistic individual who gets labeled and in the end there is a deeper realization. The speaker notices birds and how they knew he was “Autistic; they found no wrong with anything.” The birds knew who he was and they did not label him, try to define him, or find anything wrong, because nothing is wrong. Yet non-autistic “men and women stared at [him] nodding; they labeled [him] a Misfit(a misfit turning and turning)”; They were quick to notice something that they define as “abnormal” only because they were ignorant and labeling him misfit which means someone or something that is set apart from the others. Similar to how many label autistic individuals as misfit or abnormal or retarded or strange, they attempt to set him apart from everyone else and determine an identity for him which is that he does not belong. They labeled him a Misfit who was turning and turning, however he states “why stop turning and turning when right can be found with everything?” This final realization shows that though he may be turning and turning, that is who he is, not a misfit; he enjoys turning and turning so why stop based on someone’s opinion of him that is wrong. He realizes that just because some people want to try and find things that are wrong in the world, does not mean there are things wrong and does not mean he is wrong; a person cannot be wrong. Therefore, he is free to turn and turn because that is who he is and he enjoys it; nobody can control what someone can do, who they are because of how they want to label them.

 In the end of the poem the speaker owns who he is, he knows he is autistic and he knows people are going to label him or autistic people in general, but that does not stop him from being who he is because he is a human and is right. Autistic individuals are labeled by people who do not understand who they are and they are aware of these labels, the inaccuracy, the hurtfulness, however, they still own who they are, their abilities and create their own definition of themselves because that is their right as people.

Work Cited

Mukhopadhyay, Tito Rajarshi. Misfit.

Romkema, Craig. Perspectives.

Sinclair, Jim. “DON’T MOURN FOR US.” Don’t Mourn For Us, www.autreat.com/dont_mourn.html.

“I pledge…” Allison Palmer

Word Count 1216

MPP- Allison Palmer Poems

Allison Palmer

Professor Foss

Dislit

23 April 2020

Major Project

Permanent Darkness

He keeps telling me to just do it.

It won’t hurt, he says.

My coarse fingers loosen slightly from the railing.

Below the sidewalk looks welcoming, with its arms wide.

He isn’t wrong. No one would care, or notice.

I make eye contact with a cardinal flying by

He has a look of peace that I feel my heart reaching for.

She says don’t, and reminds me of the baby.

It wouldn’t be fair, she says.

The railing pulls me closer, closer than my husband has in a long time.

The people below are smiling and waving, do they want me to come to them?

She is wrong, the baby would be better off.

Time slows down and the bird stops and stares.

Then I am him. I am flying through the sky.

My fingers caressed the railing goodbye.

The sounds of people and cars fill the air, but all I hear is my heart.

It’s no longer reaching or lost.

He was right, it didn’t hurt.

The sidewalk absorbed me and made me feel whole.

And all at once the darkness was permanent.

The Butterfly Within

On the petal of a lily sat a butterfly

A butterfly bluer than my tears

His wings flutter open attempting to fly

He stumbles to the ground

Struggling to hold himself up

His one wing broken, his downfall

His tiny legs climb the flower’s stem

As he reaches the edge of the petal

His broken wing flaps in the wind

He dives off the petal and soars

The broken wing being uplifted by the wind, this time his advantage

50/50

The bars on the windows keep me from falling out

But they also block my view of the people below.

The padded walls are soft against my aching body

But they also make me feel small.

The jacket keeps me warm

But it also pulls my arms too tight.

The pills taste good in pudding

But they also make me feel empty inside.

I feel safe

But I also feel alone.

Feelin’ Alive

The sound of silence can be quite lovely.

Silence fills me with peace when I find myself adrift.

I feel the music within as it flows through my tired veins.

It is a warmth one feels radiating from a smile.

My ears may fail me, but I am liberated through touch.

I may not be able to hear the first words my mother ever spoke to me

But I felt her love overpower me everytime she caressed my hair.

My ears do not understand the complexity of song

But my body follows through by creating their own art in dance.

The “I’m sorry’s” mean nothing to me

It’s the embrace that eliminates any darkness within.

One touch lights the flame within.

Without touch, the body is numb,

a person can survive without hearing a pin drop,

But physical numbness leads to emotional numbness.

To be numb, is to be empty.

As long as I can dive myself deep within touch, I am full

I am alive.

My Home

Your eyes are a deep blue, but they are unfamiliar with the blue of sadness and pity

They paint my entire body as they go up and down, not stopping at my misshapen legs

They stop at my starved lips; they hold them tight every night.

When your hands find mine they don’t count my fingers in disbelief,

Our hands dance together turning into two long lost lovers.

There is no ring holding you in as you fight back laughter,

Our laughs are insync with one another.

I am nobody’s puppet with strings pulling me, strangling me, to perform to someone else’s routine.

You raise me up and are my very own pedestal.

When I fall, it is not a rush to help

Instead you are right there beside me.

We lay there, your eyes swimming with in mine and despite the fall

Despite my misshapen legs

Despite my lost fingers

I feel safer than if I was wrapped in bubble wrap.

You aren’t my lover, you are my home.

My Lennie

He doesn’t know any better.

He never meant to hurt anyone, it was all out of curiosity.

The kind of curiosity kids project.

It’s not his fault, it’s just who he is.

He was born stupid, never had much sense to him.

They’ll want to hurt him real good this time.

I can’t let that happen, he really isn’t a monster, just stupid.

There is only one way to help him, to save him.

It won’t hurt, it’ll be quick and he’ll have no idea.

I close my eyes, point, and my fingers slowly grip the trigger.

BOOM

It’s over, it’s what was best, he is better now.

Character

I asked my Grandpa why he always drank out of the broken coffee mug.

The mug was a faded brown with speckles that fell off in the dishwasher and a nut size crack missing from the rim.

He picked up the rugged mug, took a sip of the bitterness and out migrated a smile.

“My dear it is not broken, it has character,””

He slowly puts the mug on the slanted kitchen table 

He grips his coarse wheels and wheels towards me with all of the strength left in him.

He places a coarse hand on my cheek,

“And it is character that fills this crazy life with beauty.”

diffabilities

I based my major project off of disabilities in poetry and the poems we read in class. I wanted to portray different disabilities and representations in my poems with different formats and voices. My process consisted of reading the poems that we read in class and taking different themes, voices, and disabilities from the poems and from other texts in class. After reading the poems I took time on each individual poem and would only focus on that poem before moving on to the next. This step allowed me to get in the mindset for that poem and pour all of my creative thinking into it. I decided I wanted to include different disabilities to present a variety of perspectives and feelings regarding disability; I wanted to also allow for inclusion. I had different goals for different poems trying to incorporate different ideas surrounding disability. My main goal was to present how I feel regarding disability and the feeling of freedom they deserve and that they are human and are capable of living the way they want to. I wanted to represent some social issues regarding disability and how people believe people with disabilities are incompetent and can not take care of themselves or make their own decisions. I also wanted to take on some of the poets’ tone regarding disability which is usually portraying people with disabilities as broken, so I included that, but I transformed the brokenness to appreciation. My other main goal was to create and highlight the beauty behind disability and the sense of ownership with disability.

My first poem is called “Permanent Darkness” and is about a mother who is dealing with postpartum depression and is hearing voices. She ultimately decides to commit suicide after a long battle with her inner self and voices. I wanted to include depression in the lists of my poems because it is a debate whether mental illness is a disability and how it is viewed in society. I wanted to show the inner battles one may face with this disability and I the title “permanent dankness” represents that committing the suicide may have freed her from her metaphorical darkness, but it was ultimately ending the light in her life. My Next poem “50/50” represents another disability regarding mental illness and it is someone in what could be considered a psychiatric hospital. I wanted to portray what it feels like from the perspective of the person with the disability and how they felt about the situation and I wanted to show pros and cons, even though the cons may outweigh the pros. 

“Feelin’ Alive” represents someone who is deaf and I am someone who actually shares that disability, though I may not be fully deaf yet it still was something I wanted to cover because of my personal connection. The poem allows for readers to understand that just because someone who is deaf cannot hear, does not mean they are missing out, they simply just experience the world through a different light that is almost brighter. “My Home” is one of my favorites because I wanted to depict a physical disability, while presenting the love between a person with a disability and a non disabled person. This poem is meant to show a healthy relationship between the two and that despite what some people may consider “flaws” they still love each other and are there for each other like any other relationship. 

The poem “My Lennie” is obviously based on the story Of Mice and Men and the characters Lennie and George. However, I wanted to present it in a different light, possibly suggesting it was not in their story, but yet two people who have the same experience as them; two best friends, one with a disability and one who considers himself a caretaker. I wanted to have the poem in the perspective of a caretaker with the personality of George to represent the idea that caretakers sometimes believe they are doing what’s best for the person with a disability by taking their lives into their hands and making decisions for them. The absence of names within the poem leaves it open to interpretation about who it is about and for. Lastly, my poem “Character” is about a grandfather who has a physical disability and is in a wheelchair. The grandpa is having a conversation about a broken mug he favors and the broken mug is a metaphor for disabilities and how people with disabilities are usually considered broken. However, the grandpa explains that it is not broken, it is character and the character within the mug, or disabilities, is quite lovely. This poem is my favorite because not only does it show family relationships, it highlights beauty regarding disabilities and the ownership of disabilities. The grandfather finds that his disability is beautiful and without it the world would be absent of such beauty.

The major project was a wonderful experience and I enjoyed being able to create pieces of poetry I ultimately love regarding one of my favorite topics of discussion, disability. I see several points of significance regarding the final result of my major project, that are all beneficial. One significance is the take away I have from the project and how I got to see and take on different perspectives regarding disability and I got to appreciate different disabilities and different representations of those disabilities. Lastly the ultimate significant factor of the final result of the project is that I got to show disabilities in a different light and highlight the beauties, but also the issues regarding disabilities, such as freedom and belief that disability means broken. My goal was to get readers to see disabilities in a different life and the problems revolving around seeing them only as a problem or something they are stuck with, that they are abnormal or a monster. I believe the ultimate significance was an awakening for readers.

Word Count: 1889

“I pledge”….Allison Palmer

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